{"id":3093,"date":"2022-02-25T16:43:51","date_gmt":"2022-02-25T21:43:51","guid":{"rendered":"https:\/\/geneticspolicy.nccrcg.org\/?post_type=policy-area&#038;p=3093"},"modified":"2024-09-19T11:37:01","modified_gmt":"2024-09-19T15:37:01","slug":"medical-foods","status":"publish","type":"policy-area","link":"https:\/\/geneticspolicy.nccrcg.org\/policy-area\/medical-foods\/","title":{"rendered":"Medical Foods"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; theme_builder_area=&#8221;post_content&#8221; _builder_version=&#8221;4.17.3&#8243; _module_preset=&#8221;default&#8221;][et_pb_fullwidth_header _builder_version=&#8221;4.17.3&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#cc1b00&#8243; custom_padding=&#8221;4px||1px|||&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;]<\/p>\n<p>From 2004 to 2024, the Health Resources and Services Administration (HRSA) funded the National Coordinating Center for the Regional Genetics Networks (NCC). NCC developed and maintained the Genetics Policy Hub.<\/p>\n<p>&nbsp;<\/p>\n<p>With the conclusion of NCC funding, the Genetics Policy Hub (GPH) will no longer be updated or maintained. Information on GPH should be used for historical reference only.<\/p>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; top_divider_color=&#8221;#ffffff&#8221; top_divider_height=&#8221;15px&#8221; bottom_divider_style=&#8221;asymmetric&#8221; bottom_divider_color=&#8221;#ffffff&#8221; bottom_divider_height=&#8221;25px&#8221; bottom_divider_repeat=&#8221;1x&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_post_title meta=&#8221;off&#8221; featured_image=&#8221;off&#8221; text_color=&#8221;light&#8221; admin_label=&#8221;Fullwidth Post Title&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; title_text_align=&#8221;center&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;145deg&#8221; background_color_gradient_stops=&#8221;#361420 30%|#005973 100%&#8221; background_color_gradient_start=&#8221;#361420&#8243; background_color_gradient_start_position=&#8221;30%&#8221; background_color_gradient_end=&#8221;#005973&#8243; custom_padding=&#8221;34px||34px||false|false&#8221; custom_padding_tablet=&#8221;34px||34px||false|false&#8221; custom_padding_phone=&#8221;20px||20px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; title_font_size_tablet=&#8221;40px&#8221; title_font_size_phone=&#8221;30px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;2_3,1_3&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;2_3&#8243; admin_label=&#8221;Main Body&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Last Updated On&#8221; module_class=&#8221;last_update_on&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|700||on|||||&#8221; text_text_color=&#8221;rgba(0,0,0,0.5)&#8221; text_font_size=&#8221;12.5px&#8221; custom_margin=&#8221;30px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Updated On <style>\n    \/* Short Code Modules *\/\n    .insert_last_update_date.last_update_date{\n        background-color: #f9f9f9;\n        color: #444444;\n        font-size: 100%;\n        padding: 0.2rem 0.5rem;\n        border-radius: 1rem;\n    }\n<\/style>\n<span class=\"insert_last_update_date last_update_date\">Sep 19, 2024<\/span>\n\n<\/p>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;PDF &#038; Print&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_right&#8221; vertical_offset=&#8221;20px&#8221; width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"pdfprnt-buttons\"><a href=\"javascript: imageToPdf()\" class=\"pdfprnt-button pdfprnt-button-pdf\" target=\"_self\"><img decoding=\"async\" src=\"https:\/\/geneticspolicy.nccrcg.org\/wp-content\/uploads\/pdf-print-buttons\/pdf_button.png?134760547\" alt=\"image_pdf\" title=\"View PDF\" \/><span class=\"pdfprnt-button-title pdfprnt-button-pdf-title\">View as PDF<\/span><\/a><\/div>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;rgba(114,114,114,0.95)&#8221; text_font_size=&#8221;14px&#8221; background_enable_color=&#8221;off&#8221; box_shadow_horizontal_last_edited=&#8221;off|desktop&#8221; global_colors_info=&#8221;{}&#8221; box_shadow_horizontal__hover_enabled=&#8221;off|desktop&#8221;]<\/p>\n<p>This information is meant to be used for educational purposes to inform providers, patients, and genetic service delivery stakeholders about genetics policy topics. Sharing of information, resources, or policy statements is no way an endorsement of stated positions by NCC.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Introduction<\/h2>\n<p>Medical nutrition refers to medical food products that are used for the nutritional management of a condition or disease. For example, if a baby is born prematurely and cannot eat, that baby will receive tube feeding. The food that is put through the tube is medical nutrition.<\/p>\n<p>One well-known example of medical nutrition can be seen in the case of children with phenylketonuria (PKU) who are unable to properly process foods with phenylalanine. If they eat food with phenylalanine, their body cannot convert it to tyrosine. The phenylalanine will cause intellectual disability. To avoid this, they need to eat a PKU diet that includes medical nutrition. The medical nutrition has essential amino acids, such as tyrosine, but no phenylalanine. It is impossible to find these types of foods in the grocery store.<\/p>\n<p>Some health plans cover the cost of medical nutrition while others that do not. Some would argue that health plans should not need to cover the cost of medical nutrition, as it is something you eat. If you don\u2019t cover the cost of regular food, why should a medical plan have to cover the cost of medical nutrition? There are others who argue that food and medical nutrition are not the same. Medical nutrition is typically more expensive than food; it cannot be bought in a grocery store; it is needed for people to remain in good health.<\/p>\n<p>In 2002, medical nutrition became a Medicare benefit for certain patients after a lengthy legislative process. For an analysis of the Medicare requirement, you can read this <a href=\"https:\/\/www.jrnjournal.org\/article\/S1051-2276(02)39783-8\/fulltext\">article<\/a> published by the Journal of Renal Nutrition. Further coverage under Medicaid, CHIP, Medicare, FEHBP, and private insurance has been introduced to the United States Congress.<\/p>\n<h2>Legislation and Regulation<\/h2>\n<div>\n<div><span>The Medical Nutrition Therapy Act of 2020 (<\/span><span><a href=\"https:\/\/www.congress.gov\/bill\/116th-congress\/house-bill\/6971?s=1&amp;r=5\">H.R. 6971<\/a><\/span><span>) expands Medicare coverage of medical nutrition therapy services.<\/span><\/div>\n<div><span>\u00a0<\/span><\/div>\n<\/div>\n<p>Are you interested in learning what your state\u2019s government or the federal government are currently proposing for either legislation or regulation? Check out <a href=\"https:\/\/geneticspolicy.nccrcg.org\/legislative-policies\/\" target=\"_blank\" rel=\"noopener\">Legislative\/Tracking system<\/a> for up-to-date information and subscribe to our <a href=\"https:\/\/twitter.com\/geneticspolicy\" target=\"_blank\" rel=\"noopener\">Twitter<\/a> channel to get the latest updates in your pocket.<\/p>\n<h2>Policy Positions<\/h2>\n<div>\n<p><span>Organizations working within the genetics community (national genetic organizations, advocacy organizations, etc.) have published positions on medical nutrition. Explore these position statements below.<\/span><\/p>\n<p>&nbsp;<\/p>\n<\/div>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n    <span><\/span>\n    <style>\n        \/* Fix for empty P tag *\/\n        .wp-block-group__inner-container > p{\n            display: none;\n        }\n        .position-widget {\n            margin: -2rem 0 2rem;\n        }\n        .position-widget .header{\n            display: block;\n            background-color: #efefef;\n            color: #444444;\n            font-size: 0.8rem;\n            text-align: center;\n            border-radius: 5px 5px 0 0;\n        }\n        .position-widget .body{\n            padding: 0 0 1rem 0;\n            background-color: #efefef;\n            border-radius: 0 0 5px 5px;\n            box-shadow: 0px 0px 5px inset rgba(0,0,0, 0.2);\n        }\n        .position-widget .body > .scroller{\n            padding: 1rem 1rem 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    .position-widget .footer a.export span{\n            font-size: 0.8rem;\n            font-weight: bold;\n        }\n    <\/style>\n    <div class=\"position-widget\">\n        <div class=\"header\">Position Statements by Organizations<\/div>\n        <div class=\"body\">\n            <div class=\"scroller\">\n                <div class=\"wrapper\">\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Position Statement on Medical Foods\">Position Statement on Medical Foods<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"http:\/\/www.gmdi.org\/GMDI-Advocacy\/Position-Statement-on-Medical-Foods\" target=\"_blank\"  title=\"http:\/\/www.gmdi.org\/GMDI-Advocacy\/Position-Statement-on-Medical-Foods\" aria-label=\"Hyperlink for this policy position\">http:\/\/www.gmdi.org\/GMDI-Advocacy\/Position-Statement-on-Medical-Foods<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #2241a5\" title=\"Genetic Metabolic Dietitians International (GMDI)\">Genetic Metabolic Dietitians International (GMDI)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Medical Nutrition\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #cd92bb\">Medical Nutrition<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\"><\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"immediate notification of the health care provider\">immediate notification of the health care provider<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.simd.org\/Issues\/SIMD%20NBS%20Critical%20Conditions%20policy%20statement.pdf\" target=\"_blank\"  title=\"https:\/\/www.simd.org\/Issues\/SIMD%20NBS%20Critical%20Conditions%20policy%20statement.pdf\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.simd.org\/Issues\/SIMD%20NBS%20Critical%20Conditions%20policy%20statement.pdf<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #c9342a\" title=\"Society for Inherited Metabolic Disorders (SIMD)\">Society for Inherited Metabolic Disorders (SIMD)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Medical Nutrition\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #cd92bb\">Medical Nutrition<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">August 21, 2018<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                <\/div>\n            <\/div>\n        <\/div>\n        <div class=\"footer\">\n            <a class=\"export\" href=\"\/exports\/Medical+Nutrition\/0\/\" title=\"Export list\"><i class=\"las la-arrow-circle-down\"><\/i> <span>Export<\/span><\/a>\n        <\/div>\n    <\/div>\n    <script>\n        window.addEventListener(\"load\", function(event){\n            jQuery( document ).ready(function($) {\n                \n       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