{"id":2457,"date":"2022-02-25T16:18:34","date_gmt":"2022-02-25T21:18:34","guid":{"rendered":"https:\/\/geneticspolicy.nccrcg.org\/?post_type=policy-area&#038;p=2457"},"modified":"2024-09-19T11:39:59","modified_gmt":"2024-09-19T15:39:59","slug":"secondary-findings","status":"publish","type":"policy-area","link":"https:\/\/geneticspolicy.nccrcg.org\/policy-area\/secondary-findings\/","title":{"rendered":"Secondary Findings"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; theme_builder_area=&#8221;post_content&#8221; _builder_version=&#8221;4.17.3&#8243; _module_preset=&#8221;default&#8221;][et_pb_fullwidth_header _builder_version=&#8221;4.17.3&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#cc1b00&#8243; custom_padding=&#8221;4px||1px|||&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;]<\/p>\n<p>From 2004 to 2024, the Health Resources and Services Administration (HRSA) funded the National Coordinating Center for the Regional Genetics Networks (NCC). NCC developed and maintained the Genetics Policy Hub.<\/p>\n<p>&nbsp;<\/p>\n<p>With the conclusion of NCC funding, the Genetics Policy Hub (GPH) will no longer be updated or maintained. Information on GPH should be used for historical reference only.<\/p>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; top_divider_color=&#8221;#ffffff&#8221; top_divider_height=&#8221;15px&#8221; bottom_divider_style=&#8221;asymmetric&#8221; bottom_divider_color=&#8221;#ffffff&#8221; bottom_divider_height=&#8221;25px&#8221; bottom_divider_repeat=&#8221;1x&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_post_title meta=&#8221;off&#8221; featured_image=&#8221;off&#8221; text_color=&#8221;light&#8221; admin_label=&#8221;Fullwidth Post Title&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; title_text_align=&#8221;center&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;145deg&#8221; background_color_gradient_stops=&#8221;#361420 30%|#005973 100%&#8221; background_color_gradient_start=&#8221;#361420&#8243; background_color_gradient_start_position=&#8221;30%&#8221; background_color_gradient_end=&#8221;#005973&#8243; custom_padding=&#8221;34px||34px||false|false&#8221; custom_padding_tablet=&#8221;34px||34px||false|false&#8221; custom_padding_phone=&#8221;20px||20px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; title_font_size_tablet=&#8221;40px&#8221; title_font_size_phone=&#8221;30px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;2_3,1_3&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;2_3&#8243; admin_label=&#8221;Main Body&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Last Updated On&#8221; module_class=&#8221;last_update_on&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|700||on|||||&#8221; text_text_color=&#8221;rgba(0,0,0,0.5)&#8221; text_font_size=&#8221;12.5px&#8221; custom_margin=&#8221;30px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Updated On <style>\n    \/* Short Code Modules *\/\n    .insert_last_update_date.last_update_date{\n        background-color: #f9f9f9;\n        color: #444444;\n        font-size: 100%;\n        padding: 0.2rem 0.5rem;\n        border-radius: 1rem;\n    }\n<\/style>\n<span class=\"insert_last_update_date last_update_date\">Sep 19, 2024<\/span>\n\n<\/p>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;PDF &#038; Print&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_right&#8221; vertical_offset=&#8221;20px&#8221; width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"pdfprnt-buttons\"><a href=\"javascript: imageToPdf()\" class=\"pdfprnt-button pdfprnt-button-pdf\" target=\"_self\"><img decoding=\"async\" src=\"https:\/\/geneticspolicy.nccrcg.org\/wp-content\/uploads\/pdf-print-buttons\/pdf_button.png?134760547\" alt=\"image_pdf\" title=\"View PDF\" \/><span class=\"pdfprnt-button-title pdfprnt-button-pdf-title\">View as PDF<\/span><\/a><\/div>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;rgba(114,114,114,0.95)&#8221; text_font_size=&#8221;14px&#8221; background_enable_color=&#8221;off&#8221; box_shadow_horizontal_last_edited=&#8221;off|desktop&#8221; global_colors_info=&#8221;{}&#8221; box_shadow_horizontal__hover_enabled=&#8221;off|desktop&#8221;]<\/p>\n<p>This information is meant to be used for educational purposes to inform providers, patients, and genetic service delivery stakeholders about genetics policy topics. Sharing of information, resources, or policy statements is no way an endorsement of stated positions by NCC.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Introduction<\/h2>\n<p>Secondary findings are test results that provide information other medical conditions than what was originally being tested. In genetics, secondary findings are test results that provide information about changes (variants) in a gene unrelated to the primary purpose for the testing. These are unexpected diagnoses. For example:<\/p>\n<ul>\n<li>Benjamin injured his leg and a doctor took an x-ray to find out if there is a fracture. That x-ray shows a mass that is likely cancer. The mass would be considered a secondary finding.<\/li>\n<\/ul>\n<p>There are situations where most people would agree that a provider has a duty to tell a patient about a secondary finding, such as Benjamin\u2019s potential cancer diagnosis above. However, other situations may be considered more controversial. For example:<\/p>\n<ul>\n<li>Anne has cancer and needs to have a bone marrow transplant. The cancer team has asked all of her siblings to be tested to see if they are a match. In reviewing the results of the testing, the laboratory determines that one of Anne\u2019s sisters is not her full sister. Most likely, they share a mother, but do not have the same father. Does that provider have a duty to tell Anne or the sister?<\/li>\n<\/ul>\n<p>Several articles have been written about the ethics of returning secondary findings. For more information, here are links to articles published in <a href=\"https:\/\/www.nature.com\/articles\/s41431-018-0311-3\" target=\"_blank\" rel=\"noopener\">Nature<\/a>, European Journal of Human Genetics <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/books\/NBK525079\/\" target=\"_blank\" rel=\"noopener\">(EJHG)<\/a>, and the <a href=\"https:\/\/bioethicsarchive.georgetown.edu\/pcsbi\/sites\/default\/files\/Researcher%20Primer%20Incidental%20Findings%2010.30.16.pdf\" target=\"_blank\" rel=\"noopener\">Presidential Commission for the Study of Bioethical Issues<\/a>.<\/p>\n<p>The decision to return secondary findings can be complex and may depend on the nature of the finding. The decision to return secondary findings may also differ based on if the person is enrolled in a research study vs. a patient receiving direct care. For example in the scenario about Benjamin and his suspicious leg mass above, what if he had been in a research study where hundreds of anonymous people had x-rays taken? Would it change the duty to tell him about the possible cancer? Should researchers be required to collect identifying information because cases like this might occur?<\/p>\n<ul><\/ul>\n<h2>Legislation and Regulation<\/h2>\n<div>\n<p>On a federal level, there are no laws or regulations that apply specifically to secondary findings in genetics. Individual institutions may have policies on whether or not their researcher are required to return findings, including secondary findings.<\/p>\n<\/div>\n<p>Are you interested in learning what your state\u2019s government or the federal government are currently proposing for either legislation or regulation? Check out <a href=\"https:\/\/geneticspolicy.nccrcg.org\/legislative-policies\/\" target=\"_blank\" rel=\"noopener\">Legislative\/Tracking system<\/a> for up-to-date information and subscribe to our <a href=\"https:\/\/twitter.com\/geneticspolicy\" target=\"_blank\" rel=\"noopener\">Twitter<\/a> channel to get the latest updates in your pocket.<\/p>\n<h2>Policy Positions<\/h2>\n<div>\n<p><span>Organizations working within the genetics community (national genetic organizations, advocacy organizations, etc.) have published positions on secondary findings. Explore these position statements below.<\/span><\/p>\n<p>&nbsp;<\/p>\n<\/div>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n    <span><\/span>\n    <style>\n        \/* Fix for empty P tag *\/\n        .wp-block-group__inner-container > p{\n            display: none;\n        }\n        .position-widget {\n            margin: -2rem 0 2rem;\n        }\n        .position-widget .header{\n            display: block;\n            background-color: #efefef;\n            color: #444444;\n            font-size: 0.8rem;\n            text-align: center;\n            border-radius: 5px 5px 0 0;\n        }\n        .position-widget .body{\n            padding: 0 0 1rem 0;\n            background-color: #efefef;\n            border-radius: 0 0 5px 5px;\n            box-shadow: 0px 0px 5px inset rgba(0,0,0, 0.2);\n        }\n        .position-widget .body > .scroller{\n            padding: 1rem 1rem 0 1rem;\n            overflow-y: auto;\n            max-height: 500px;\n        }\n        .position-widget .body .scroller > .wrapper{\n            display: flex;\n            align-items: center;\n            justify-content: left;\n            flex-flow: row wrap;\n            align-content: flex-start;\n        }\n        .position-widget .body .scroller > .wrapper > .item{\n            flex: 33.3%;\n            max-width: 33.3%;\n            padding: 0 1rem 1rem 0;\n            box-sizing: border-box;\n        }\n        .position-widget .body .scroller > .wrapper > .item .item_wrapper{\n            border: 1px solid #fff;\n            background-color: #fff;\n            padding: 1rem;\n            border-radius: 5px;\n            box-shadow: 0 0 5px rgba(0,0,0,0.2);\n        }\n        .position-widget .body .scroller > .wrapper > .item:hover .item_wrapper{\n            border: 1px solid #999;\n        }\n        .position-widget .body .scroller > .wrapper div.item h6{\n         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    padding: 5px 5px;\n            border-radius: 20px;\n            font-size: 0.8rem;\n            color: #fff;\n        }\n        .position-widget .body .scroller > .wrapper div.item div.field.subject .value{\n            overflow: hidden;\n            white-space: nowrap;\n        }\n        .position-widget .body .scroller > .wrapper div.item div.field.subject .value span{\n            display: inline-block;\n            color: #000;\n        }\n        .position-widget .body .scroller > .wrapper .item  div.field{\n            margin-bottom: 1rem;\n        }\n        .position-widget .body .scroller > .wrapper .item  div.field:last-child{\n            margin-bottom: 0;\n        }\n        .position-widget .body .scroller > .wrapper  .item  div.field .label{\n            font-size: 0.7rem;\n            color: #444444;\n            text-transform: uppercase;\n            line-height: 1.2;\n        }\n        .position-widget .footer{\n            text-align: right;\n        } \n        .position-widget .footer a.export span{\n            font-size: 0.8rem;\n            font-weight: bold;\n        }\n    <\/style>\n    <div class=\"position-widget\">\n        <div class=\"header\">Position Statements by Organizations<\/div>\n        <div class=\"body\">\n            <div class=\"scroller\">\n                <div class=\"wrapper\">\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Direct to Consumer Genetic Testing\">Direct to Consumer Genetic Testing<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.aafp.org\/about\/policies\/all\/direct-to-consumer-genetic-testing.html\" target=\"_blank\"  title=\"https:\/\/www.aafp.org\/about\/policies\/all\/direct-to-consumer-genetic-testing.html\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.aafp.org\/about\/policies\/all\/direct-to-consumer-genetic-testing.html<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #87144d\" title=\"American Academy of Family Physicians (AAFP)\">American Academy of Family Physicians (AAFP)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Direct-to-Consumer Testing\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #ab95d4\">Direct-to-Consumer Testing<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">July 1, 2019<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"ACMG SF v3.1 list for reporting of secondary findings in clinical exome and genome sequencing: A policy statement of the American College of Medical Genetics and Genomics (ACMG)\">ACMG SF v3.1 list for reporting of secondary findings in clinical exome and genome sequencing: A policy statement of the American College of Medical Genetics and Genomics (ACMG)<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.acmg.net\/PDFLibrary\/Secondary-Findings-v3.1.pdf\" target=\"_blank\"  title=\"https:\/\/www.acmg.net\/PDFLibrary\/Secondary-Findings-v3.1.pdf\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.acmg.net\/PDFLibrary\/Secondary-Findings-v3.1.pdf<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #c9522a\" title=\"American College of Medical Genetics and Genomics (ACMG)\">American College of Medical Genetics and Genomics (ACMG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Direct-to-Consumer Testing\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #ab95d4\">Direct-to-Consumer Testing<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">February 28, 2022<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Ancestry Testing Statement\">Ancestry Testing Statement<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.ashg.org\/wp-content\/uploads\/2008\/11\/Statement-20081311-ASHGAncestryTesting.pdf\" target=\"_blank\"  title=\"https:\/\/www.ashg.org\/wp-content\/uploads\/2008\/11\/Statement-20081311-ASHGAncestryTesting.pdf\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.ashg.org\/wp-content\/uploads\/2008\/11\/Statement-20081311-ASHGAncestryTesting.pdf<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #41a819\" title=\"American Society of Human Genetics (ASHG)\">American Society of Human Genetics (ASHG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Ancestry,Genetic Testing,Direct-to-Consumer Testing\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #91a0d2\">Ancestry<\/span>\n                                                                                <span class=\"subject_entry\" style=\"background-color: #c192cd\">Genetic Testing<\/span>\n                                                                                <span class=\"subject_entry\" style=\"background-color: #ab95d4\">Direct-to-Consumer Testing<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">November 13, 2008<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Direct-to-consumer genetic testing: a revised position statement of the American College of Medical Genetics and Genomics\">Direct-to-consumer genetic testing: a revised position statement of the American College of Medical Genetics and Genomics<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.acmg.net\/PDFLibrary\/Direct-To-Consumer-Genetic-Testing-Policy-Statement.pdf\" target=\"_blank\"  title=\"https:\/\/www.acmg.net\/PDFLibrary\/Direct-To-Consumer-Genetic-Testing-Policy-Statement.pdf\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.acmg.net\/PDFLibrary\/Direct-To-Consumer-Genetic-Testing-Policy-Statement.pdf<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #c9522a\" title=\"American College of Medical Genetics and Genomics (ACMG)\">American College of Medical Genetics and Genomics (ACMG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Direct-to-Consumer Testing\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #ab95d4\">Direct-to-Consumer Testing<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">December 17, 2015<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Direct-to-Consumer Genetic\/Genomic Testing (DTC-GT)\">Direct-to-Consumer Genetic\/Genomic Testing (DTC-GT)<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.isong.org\/resources\/Documents\/PS_Direct%20to%20Consumer%20GeneticGenomic%20Testing_September%202022.pdf\" target=\"_blank\"  title=\"https:\/\/www.isong.org\/resources\/Documents\/PS_Direct%20to%20Consumer%20GeneticGenomic%20Testing_September%202022.pdf\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.isong.org\/resources\/Documents\/PS_Direct%20to%20Consumer%20GeneticGenomic%20Testing_September%202022.pdf<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #8036db\" title=\"International Society of Nurses in Genetics (ISONG)\">International Society of Nurses in Genetics (ISONG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Direct-to-Consumer Testing\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #ab95d4\">Direct-to-Consumer Testing<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">September 1, 2022<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Advancing Evidence-Based Genetic Testing\">Advancing Evidence-Based Genetic Testing<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.ashg.org\/wp-content\/uploads\/2018\/01\/Comments-010818-FDA-2017-N-1129.pdf\" target=\"_blank\"  title=\"https:\/\/www.ashg.org\/wp-content\/uploads\/2018\/01\/Comments-010818-FDA-2017-N-1129.pdf\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.ashg.org\/wp-content\/uploads\/2018\/01\/Comments-010818-FDA-2017-N-1129.pdf<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #41a819\" title=\"American Society of Human Genetics (ASHG)\">American Society of Human Genetics (ASHG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Genetic Testing,Direct-to-Consumer Testing\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #c192cd\">Genetic Testing<\/span>\n                                                                                <span class=\"subject_entry\" style=\"background-color: #ab95d4\">Direct-to-Consumer Testing<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">January 8, 2018<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"At-Home Genetic Testing Position Statement\">At-Home Genetic Testing Position Statement<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.nsgc.org\/Policy-Research-and-Publications\/Position-Statements\/Position-Statements\/Post\/at-home-genetic-testing-position-statement\" target=\"_blank\"  title=\"https:\/\/www.nsgc.org\/Policy-Research-and-Publications\/Position-Statements\/Position-Statements\/Post\/at-home-genetic-testing-position-statement\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.nsgc.org\/Policy-Research-and-Publications\/Position-Statements\/Position-Statements\/Post\/at-home-genetic-testing-position-statement<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #d334c3\" title=\"National Society of Genetic Counselors (NSGC)\">National Society of Genetic Counselors (NSGC)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Direct-to-Consumer Testing,Genetic Privacy\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #ab95d4\">Direct-to-Consumer Testing<\/span>\n                                                                                <span class=\"subject_entry\" style=\"background-color: #c2c48b\">Genetic Privacy<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">June 24, 2023<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                <\/div>\n            <\/div>\n        <\/div>\n        <div class=\"footer\">\n            <a class=\"export\" href=\"\/exports\/Direct-to-Consumer+Testing%2CGenetic+Privacy\/0\/\" title=\"Export list\"><i class=\"las la-arrow-circle-down\"><\/i> <span>Export<\/span><\/a>\n        <\/div>\n    <\/div>\n    <script>\n        window.addEventListener(\"load\", function(event){\n            jQuery( document ).ready(function($) {\n                \n            });\n        });\n    <\/script>\n    \n\n\n\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; admin_label=&#8221;Jump Links Sidebar&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_sidebar area=&#8221;sidebar-1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;34px|||||&#8221; border_style_all=&#8221;none&#8221; 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