Your Hub for the Latest Genetics Policy Information and Resources
The National Coordinating Center for the Regional Genetics Networks (NCC) is pleased to develop and share resources related to genetics policy across the U.S. Within the hub, you can find the latest legislation and regulation at the state and federal level, latest information on Medicaid coverage policy, information about specific policy topics and related to policy statements from national organizations, and much more!
Interested in a general genetics policy topic such as whole exome sequencing or a policy related to a specific condition? Use the search bar above to find information related to proposed legislation/regulation, Medicaid coverage policy, policy statements, events, and general resources.
Our Resources
Genetics Policy Areas
Interested in exploring how policy affects genetics patients and providers? In the Policy Area of our website, we provide a brief overview of why a specific topic (ex. newborn screening) is important to the delivery of genetics care, how policy affects the topic area, and share position statements from national organizations on the policy area.
Proposed Legislation/Regulation
Did you know that almost daily there is a piece of legislation or regulation introduced in the United States related to genetics? Policies range from coverage of specific genetic tests or services to supporting educational programs about genetic conditions. Explore what your state is currently considering by visiting our interactive map.
Medicaid Coverage of Genetic Services
Do you want to know what your state’s Medicaid program covers related to genetic services? Updated yearly, our Medicaid database includes general coverage criteria, coverage of specific genetic tests, and coverage of specific services, such as medical foods. The database collects publicly available information from each state Medicaid program.
Our Twitter Account
RT @CCHPCA: 2022 In Review: State Telehealth Policy Legislative Roundup! As the year winds down, the Center for Connected Health Policy (C… Read More
RT @PKIGenomics: We're excited to announce that we are now in network with Medicaid Michigan! Being able to bill Medicaid helps us fulfill… Read More
The November 28th-December 2nd GPH Wrap-Up of the Week includes: a bill introduced in #MI to require @MichSoS “to develop a fund-raising plate recognizing #SickleCell anemia education and treatment”; and to "create a sickle cell anemia awareness fund." Read More
On November 29, 2022, the #MI Senate and House introduced a bill to require @MichSoS “to develop a fund-raising plate recognizing #SickleCell anemia education and treatment”; and to "create a sickle cell anemia awareness fund." Learn more at: https://t.co/ougNPDi37G Read More
RT @CatalystCenter: ICYMI: @CMSGov approved Arkansas Medicaid's 1115 waiver to address health-related social needs ⬇️⬇️ Read More
The November 14-18th GPH Twitter Wrap-Up of the Week highlighted two state bills introduced in Texas related to #GeneticCounselor licensure; and establishment of a sickle cell disease registry in the state. Read More
The #TX House introduced a bill on November 14, 2022 to: require licensure for #genetic counselors; define licensure eligibility requirements; establish a Licensed #GeneticCounselor Advisory Board; and set fees. Learn more at: https://t.co/RxryCfhaEy Read More
On November 14, 2022, the #Texas House introduced a bill to establish a #SickleCell disease registry to aid in the cure and treatment of sickle cell disease in the state. Learn more at: https://t.co/RkOsWxCZUx Read More
Latest Genetics Policy Events
Many organizations, including NCC, hold events that relate to genetics policy. Find the next webinar, meeting, social media event, or more by checking out our calendar of activities.
Legislative, Insurance, and Finance Tracking Newsletter
Would you prefer to receive updates about genetics policy to your inbox? NCC publishes the Legislative, Insurance, and Finance Tracking (LIFT) Newsletter tri-annually with the latest updates on federal legislation, as well as policy resources developed by NCC and other organizations that are helpful to the genetics community.
Newsletter Signup
NCC, the organization that publishes the Genetics Policy Hub, publishes a tri-annual newsletter that provides the latest updates on federal legislation, as well as genetics policy resources developed by us and our national partners. Subscribe today to receive the latest issue in your inbox.