The mission of the Genetics Policy Hub (GPH) is to share the latest information about genetics policy across the United States with individuals who work or are interested in the genetic service delivery system. Policy information tracked ranges from how state and federal governments and agencies support the delivery of genetics to general resources on a wide range of topics that affect the delivery of care.

GPH is a program of the National Coordinating Center for the Regional Genetics Networks (NCC). Explore more about our funding, who has contributed to GPH, or how to contact us below!

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Are you interested in learning more about GPH or about the broader work of the National Coordinating Center? Would you like to recommend we explore a specific policy topic? We want to hear from you! Fill out the form and we will be in touch soon.

Our Address

7101 Wisconsin Avenue
Suite 1101
Bethesda, MD 20814
ph: 301-718-9603


We would like to thank everyone who has helped develop or update resources within GPH.

  • Molly Caisse, NCC Project Coordinator
  • Susanna Ginsburg, MBA, NCC Healthcare Access and Financing Consultant
  • Annie Li, NCC Project Assistant
  • Megan Lyon, MPH, NCC Associate Project Director
  • NCC Healthcare Access and Financing Workgroup Members
Policy Areas
  • Nguyen Park, MS, PA-C, DFAAPA, NHGRI/ACMG Fellow (Summer 2021)
  • Renee Rider, MS, JD NHGRI/ACMG Fellow (Summer 2020)
Medicaid Policies Database
  • Samantha Pettersen, NCC Intern (Summer 2021)

Funding Acknowledgement

This effort, a program of the National Coordinating Center for the Regional Genetics Networks, is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Cooperative Agreement #UH9MC30770-01-00 from 6/2017-5/2020 for $800,000 per award year.

This information or content and conclusions are those of the author and should not be construed as the official position or policy of, nor should any endorsements be inferred by HRSA, HHS or the U.S. Government.

About Our Home Institution

NCC is funded by the Health Resources and Services Administration (HRSA) to the American College of Medical Genetics and Genomics (ACMG). ACMG’s mission is “to reinforce and expand ACMG’s position as the leader and prominent authority in the field of medical genetics and genomics, including clinical research, while educating the medical community on the significant role that genetics and genomics will continue to play in understanding, preventing, treating and curing disease.” Learn more about ACMG at acmg.net.