Policy Areas

There are many different topics related to genetics policy that impact the delivery of genetic services. Topics can be general such as policy decisions related to genetics privacy to policy concerns for specific services such as newborn screening. Organizations ranging from genetics membership organizations to advocacy organizations share their thoughts about these topics through published policy statements.

To help clarify these topics and policy statements, we have developed short briefs that describe why a topic is a policy concern for the genetics community, list the current proposed legislation/regulation related to the topic, and share policy statements from organizations that present the organization’s stance on the topic.

The information contained in the policy areas is meant for educational purposes only. Sharing of policy statements is no way an endorsement of the stance by NCC (organization responsible for the Genetics Policy Hub).

The policy areas contain links to third-party websites. These links are provided solely as a convenience to users and not as a guarantee, warrantee, or recommendation by ACMG of the content on such third-party websites or as an indication of any affiliation, sponsorship or endorsement of such third party websites. ACMG is not responsible for the content of linked third-party sites and does not make any representations regarding the privacy practices of, or the content or accuracy of materials on, such third-party websites. If you decide to access linked third-party websites, you do so at your own risk. Your use of third-party websites is subject to the terms of use for such sites.