{"id":2439,"date":"2022-02-25T10:58:16","date_gmt":"2022-02-25T15:58:16","guid":{"rendered":"https:\/\/geneticspolicy.nccrcg.org\/?post_type=policy-area&#038;p=2439"},"modified":"2024-09-19T11:45:27","modified_gmt":"2024-09-19T15:45:27","slug":"reproductive-options","status":"publish","type":"policy-area","link":"https:\/\/geneticspolicy.nccrcg.org\/policy-area\/reproductive-options\/","title":{"rendered":"Reproductive Options"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; theme_builder_area=&#8221;post_content&#8221; _builder_version=&#8221;4.17.3&#8243; _module_preset=&#8221;default&#8221;][et_pb_fullwidth_header _builder_version=&#8221;4.17.3&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#cc1b00&#8243; custom_padding=&#8221;4px||1px|||&#8221; global_colors_info=&#8221;{}&#8221; theme_builder_area=&#8221;post_content&#8221;]<\/p>\n<p>From 2004 to 2024, the Health Resources and Services Administration (HRSA) funded the National Coordinating Center for the Regional Genetics Networks (NCC). NCC developed and maintained the Genetics Policy Hub.<\/p>\n<p>&nbsp;<\/p>\n<p>With the conclusion of NCC funding, the Genetics Policy Hub (GPH) will no longer be updated or maintained. Information on GPH should be used for historical reference only.<\/p>\n<p>[\/et_pb_fullwidth_header][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; fullwidth=&#8221;on&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; background_enable_image=&#8221;off&#8221; top_divider_color=&#8221;#ffffff&#8221; top_divider_height=&#8221;15px&#8221; bottom_divider_style=&#8221;asymmetric&#8221; bottom_divider_color=&#8221;#ffffff&#8221; bottom_divider_height=&#8221;25px&#8221; bottom_divider_repeat=&#8221;1x&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_fullwidth_post_title meta=&#8221;off&#8221; featured_image=&#8221;off&#8221; text_color=&#8221;light&#8221; admin_label=&#8221;Fullwidth Post Title&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; title_text_align=&#8221;center&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_direction=&#8221;145deg&#8221; background_color_gradient_stops=&#8221;#361420 30%|#005973 100%&#8221; background_color_gradient_start=&#8221;#361420&#8243; background_color_gradient_start_position=&#8221;30%&#8221; background_color_gradient_end=&#8221;#005973&#8243; custom_padding=&#8221;34px||34px||false|false&#8221; custom_padding_tablet=&#8221;34px||34px||false|false&#8221; custom_padding_phone=&#8221;20px||20px||false|false&#8221; custom_padding_last_edited=&#8221;on|phone&#8221; title_font_size_tablet=&#8221;40px&#8221; title_font_size_phone=&#8221;30px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_fullwidth_post_title][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;2_3,1_3&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;0px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;2_3&#8243; admin_label=&#8221;Main Body&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text admin_label=&#8221;Last Updated On&#8221; module_class=&#8221;last_update_on&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; text_font=&#8221;|700||on|||||&#8221; text_text_color=&#8221;rgba(0,0,0,0.5)&#8221; text_font_size=&#8221;12.5px&#8221; custom_margin=&#8221;30px||||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Updated On <style>\n    \/* Short Code Modules *\/\n    .insert_last_update_date.last_update_date{\n        background-color: #f9f9f9;\n        color: #444444;\n        font-size: 100%;\n        padding: 0.2rem 0.5rem;\n        border-radius: 1rem;\n    }\n<\/style>\n<span class=\"insert_last_update_date last_update_date\">Sep 19, 2024<\/span>\n\n<\/p>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;PDF &#038; Print&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; positioning=&#8221;absolute&#8221; position_origin_a=&#8221;top_right&#8221; vertical_offset=&#8221;20px&#8221; width=&#8221;100%&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<div class=\"pdfprnt-buttons\"><a href=\"javascript: imageToPdf()\" class=\"pdfprnt-button pdfprnt-button-pdf\" target=\"_self\"><img decoding=\"async\" src=\"https:\/\/geneticspolicy.nccrcg.org\/wp-content\/uploads\/pdf-print-buttons\/pdf_button.png?134760547\" alt=\"image_pdf\" title=\"View PDF\" \/><span class=\"pdfprnt-button-title pdfprnt-button-pdf-title\">View as PDF<\/span><\/a><\/div>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; text_text_color=&#8221;rgba(114,114,114,0.95)&#8221; text_font_size=&#8221;14px&#8221; background_enable_color=&#8221;off&#8221; box_shadow_horizontal_last_edited=&#8221;off|desktop&#8221; global_colors_info=&#8221;{}&#8221; box_shadow_horizontal__hover_enabled=&#8221;off|desktop&#8221;]<\/p>\n<p>This information is meant to be used for educational purposes to inform providers, patients, and genetic service delivery stakeholders about genetics policy topics. Sharing of information, resources, or policy statements is no way an endorsement of stated positions by NCC.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Introduction<\/h2>\n<p>Families with genetic conditions often run into questions about reproductive options with their current pregnancies and\/or future pregnancies. Reproductive options include, but are not be limited to:<\/p>\n<ul>\n<li>continuation of an affected pregnancy<\/li>\n<li>achieving a future pregnancy naturally, while accepting the risk of it being affected<\/li>\n<li>achieving a future pregnancy using donor sperm or eggs to avoid a genetic condition<\/li>\n<li>using in vitro fertilization (IVF) and only selecting unaffected embryos<\/li>\n<li>termination of an affected pregnancy.<\/li>\n<\/ul>\n<p>All of these options, and others not listed, have benefits and drawbacks for the families. These options are often regulated by state governments. For example, a termination at a later stage of pregnancy may be an option in one state, but not another. Likewise, states may have differing laws regarding terminations for medical reasons. Some states also have fertility preservation laws.<\/p>\n<h2>Legislation and Regulation<\/h2>\n<p>The Guttmacher Institute has an overview of abortion laws by state, which can be accessed at this <a href=\"https:\/\/www.guttmacher.org\/state-policy\/explore\/overview-abortion-laws\" target=\"_blank\" rel=\"noopener\">webpage<\/a>.<\/p>\n<p>RESOLVE tracks legislation and regulations affecting infertility coverage in each state, which can be accessed on its <a href=\"https:\/\/resolve.org\/what-are-my-options\/insurance-coverage\/infertility-coverage-state\/\" target=\"_blank\" rel=\"noopener\">website<\/a>. Specifically, they track which states have mandatory infertility coverage, IVF insurance laws, and fertility preservation laws.<\/p>\n<p>Are you interested in learning what your state\u2019s government or the federal government are currently proposing for either legislation or regulation? Check out <a href=\"https:\/\/geneticspolicy.nccrcg.org\/legislative-policies\/\" target=\"_blank\" rel=\"noopener\">Legislative\/Tracking system<\/a> for up-to-date information and subscribe to our <a href=\"https:\/\/twitter.com\/geneticspolicy\" target=\"_blank\" rel=\"noopener\">Twitter<\/a> channel to get the latest updates in your pocket.<\/p>\n<h2>Policy Positions<\/h2>\n<div>\n<p><span>Organizations working within the genetics community (national genetic organizations, advocacy organizations, etc.) have published positions on reproductive options. Explore these position statements below.<\/span><\/p>\n<p>&nbsp;<\/p>\n<\/div>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n    <span><\/span>\n    <style>\n        \/* Fix for empty P tag *\/\n        .wp-block-group__inner-container > p{\n            display: none;\n        }\n        .position-widget {\n            margin: -2rem 0 2rem;\n        }\n        .position-widget .header{\n            display: block;\n            background-color: #efefef;\n            color: #444444;\n            font-size: 0.8rem;\n            text-align: center;\n            border-radius: 5px 5px 0 0;\n        }\n        .position-widget .body{\n            padding: 0 0 1rem 0;\n            background-color: #efefef;\n            border-radius: 0 0 5px 5px;\n            box-shadow: 0px 0px 5px inset rgba(0,0,0, 0.2);\n        }\n        .position-widget .body > .scroller{\n            padding: 1rem 1rem 0 1rem;\n            overflow-y: auto;\n            max-height: 500px;\n        }\n        .position-widget .body .scroller > .wrapper{\n            display: flex;\n            align-items: center;\n            justify-content: left;\n            flex-flow: row wrap;\n            align-content: flex-start;\n        }\n        .position-widget .body .scroller > .wrapper > .item{\n            flex: 33.3%;\n            max-width: 33.3%;\n            padding: 0 1rem 1rem 0;\n            box-sizing: border-box;\n        }\n        .position-widget .body .scroller > .wrapper > .item .item_wrapper{\n            border: 1px solid #fff;\n            background-color: #fff;\n            padding: 1rem;\n            border-radius: 5px;\n            box-shadow: 0 0 5px rgba(0,0,0,0.2);\n        }\n        .position-widget .body .scroller > .wrapper > .item:hover .item_wrapper{\n            border: 1px solid #999;\n        }\n        .position-widget .body .scroller > .wrapper div.item h6{\n            font-size: 1rem;\n            padding-bottom: 1rem;\n        }\n        .position-widget .body .scroller > .wrapper div.item h6,\n        .position-widget .body .scroller > .wrapper div.item div.field:not(.subject) .value{\n            max-width: 100%;\n            position: relative;\n            overflow: hidden;\n            text-overflow: ellipsis;\n            white-space: nowrap;\n        }\n        .position-widget .body .scroller > .wrapper div.item div.field .value{\n            font-size: 0.9rem;\n            color: #444444;\n        }\n        .position-widget .body .scroller > .wrapper div.item div.field.subject .value,\n        .position-widget .body .scroller > .wrapper div.item div.field.organization .value{\n            line-height: 1;\n            margin-top: 5px;\n        }\n        .position-widget .body .scroller > .wrapper div.item div.field.subject .value span,\n        .position-widget .body .scroller > .wrapper div.item div.field.organization .value{\n            padding: 5px 5px;\n            border-radius: 20px;\n            font-size: 0.8rem;\n            color: #fff;\n        }\n        .position-widget .body .scroller > .wrapper div.item div.field.subject .value{\n            overflow: hidden;\n            white-space: nowrap;\n        }\n        .position-widget .body .scroller > .wrapper div.item div.field.subject .value span{\n            display: inline-block;\n            color: #000;\n        }\n        .position-widget .body .scroller > .wrapper .item  div.field{\n            margin-bottom: 1rem;\n        }\n        .position-widget .body .scroller > .wrapper .item  div.field:last-child{\n            margin-bottom: 0;\n        }\n        .position-widget .body .scroller > .wrapper  .item  div.field .label{\n            font-size: 0.7rem;\n            color: #444444;\n            text-transform: uppercase;\n            line-height: 1.2;\n        }\n        .position-widget .footer{\n            text-align: right;\n        } \n        .position-widget .footer a.export span{\n            font-size: 0.8rem;\n            font-weight: bold;\n        }\n    <\/style>\n    <div class=\"position-widget\">\n        <div class=\"header\">Position Statements by Organizations<\/div>\n        <div class=\"body\">\n            <div class=\"scroller\">\n                <div class=\"wrapper\">\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Eugenics and the Misuse of Genetic Information to Restrict Reproductive Freedom\">Eugenics and the Misuse of Genetic Information to Restrict Reproductive Freedom<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.cell.com\/ajhg\/fulltext\/S0002-9297(07)61737-6\" target=\"_blank\"  title=\"https:\/\/www.cell.com\/ajhg\/fulltext\/S0002-9297(07)61737-6\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.cell.com\/ajhg\/fulltext\/S0002-9297(07)61737-6<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #41a819\" title=\"American Society of Human Genetics (ASHG)\">American Society of Human Genetics (ASHG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Reproductive Options,Genetic Testing\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #cd9298\">Reproductive Options<\/span>\n                                                                                <span class=\"subject_entry\" style=\"background-color: #c192cd\">Genetic Testing<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">October 1, 1998<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Defending Reproductive Freedom\">Defending Reproductive Freedom<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.ashg.org\/advocacy\/statement-archive\/reproductive-freedom\/\" target=\"_blank\"  title=\"https:\/\/www.ashg.org\/advocacy\/statement-archive\/reproductive-freedom\/\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.ashg.org\/advocacy\/statement-archive\/reproductive-freedom\/<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #41a819\" title=\"American Society of Human Genetics (ASHG)\">American Society of Human Genetics (ASHG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Reproductive Options\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #cd9298\">Reproductive Options<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">May 1, 1991<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"ACMG statement on access to reproductive options after prenatal diagnosis\">ACMG statement on access to reproductive options after prenatal diagnosis<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.acmg.net\/PDFLibrary\/Access-Reproductive-Options-Prenatal.pdf\" target=\"_blank\"  title=\"https:\/\/www.acmg.net\/PDFLibrary\/Access-Reproductive-Options-Prenatal.pdf\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.acmg.net\/PDFLibrary\/Access-Reproductive-Options-Prenatal.pdf<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #c9522a\" title=\"American College of Medical Genetics and Genomics (ACMG)\">American College of Medical Genetics and Genomics (ACMG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Reproductive Options\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #cd9298\">Reproductive Options<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">July 19, 2013<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"item\"> \n                            <div class=\"item_wrapper\">\n                                <h6 title=\"Access to reproductive options after prenatal diagnosis\u2014 patient access and physician responsibilities: an updated position statement of the American College of Medical Genetics and Genomics (ACMG)\">Access to reproductive options after prenatal diagnosis\u2014 patient access and physician responsibilities: an updated position statement of the American College of Medical Genetics and Genomics (ACMG)<\/h6>\n\n                                <div class=\"field link\">\n                                    <div class=\"label\">Link<\/div>\n                                    <div class=\"value\"><a href=\"https:\/\/www.acmg.net\/PDFLibrary\/Access%20to%20reproductive%20options%20after%20prenatal.pdf\" target=\"_blank\"  title=\"https:\/\/www.acmg.net\/PDFLibrary\/Access%20to%20reproductive%20options%20after%20prenatal.pdf\" aria-label=\"Hyperlink for this policy position\">https:\/\/www.acmg.net\/PDFLibrary\/Access%20to%20reproductive%20options%20after%20prenatal.pdf<\/a><\/div>\n                                <\/div>\n                                <div class=\"field organization\">\n                                    <div class=\"label\">Organization<\/div>\n                                    <div class=\"value\" style=\"background-color: #c9522a\" title=\"American College of Medical Genetics and Genomics (ACMG)\">American College of Medical Genetics and Genomics (ACMG)<\/div>\n                                <\/div>\n                                <div class=\"field subject\">\n                                    <div class=\"label\">Subject<\/div>\n                                    <div class=\"value\" title=\"Reproductive Options\">\n                                                                                <span class=\"subject_entry\" style=\"background-color: #cd9298\">Reproductive Options<\/span>\n                                                                            <\/div>\n                                <\/div>\n                                <div class=\"field date\">\n                                    <div class=\"label\">Date<\/div>\n                                    <div class=\"value\">October 3, 2019<\/div>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                <\/div>\n            <\/div>\n        <\/div>\n        <div class=\"footer\">\n            <a class=\"export\" href=\"\/exports\/Reproductive+Options\/0\/\" title=\"Export list\"><i class=\"las la-arrow-circle-down\"><\/i> <span>Export<\/span><\/a>\n        <\/div>\n    <\/div>\n    <script>\n        window.addEventListener(\"load\", function(event){\n            jQuery( document ).ready(function($) {\n                \n            });\n        });\n    <\/script>\n    \n\n\n\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243; admin_label=&#8221;Jump Links Sidebar&#8221; disabled_on=&#8221;on|on|off&#8221; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_sidebar area=&#8221;sidebar-1&#8243; _builder_version=&#8221;4.16&#8243; _module_preset=&#8221;default&#8221; custom_padding=&#8221;34px|||||&#8221; border_style_all=&#8221;none&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_sidebar][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"author":3,"featured_media":570,"menu_order":0,"template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<!-- wp:divi\/placeholder \/-->","_et_gb_content_width":"1280","_EventAllDay":false,"_EventTimezone":"","_EventStartDate":"","_EventEndDate":"","_EventStartDateUTC":"","_EventEndDateUTC":"","_EventShowMap":false,"_EventShowMapLink":false,"_EventURL":"","_EventCost":"","_EventCostDescription":"","_EventCurrencySymbol":"","_EventCurrencyCode":"","_EventCurrencyPosition":"","_EventDateTimeSeparator":"","_EventTimeRangeSeparator":"","_EventOrganizerID":[],"_EventVenueID":0,"_OrganizerEmail":"","_OrganizerPhone":"","_OrganizerWebsite":"","_VenueAddress":"","_VenueCity":"","_VenueCountry":"","_VenueProvince":"","_VenueZip":"","_VenuePhone":"","_VenueURL":"","_VenueStateProvince":"","_VenueLat":"","_VenueLng":""},"tags":[52],"acf":[],"_links":{"self":[{"href":"https:\/\/geneticspolicy.nccrcg.org\/wp-json\/wp\/v2\/policy-area\/2439"}],"collection":[{"href":"https:\/\/geneticspolicy.nccrcg.org\/wp-json\/wp\/v2\/policy-area"}],"about":[{"href":"https:\/\/geneticspolicy.nccrcg.org\/wp-json\/wp\/v2\/types\/policy-area"}],"author":[{"embeddable":true,"href":"https:\/\/geneticspolicy.nccrcg.org\/wp-json\/wp\/v2\/users\/3"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/geneticspolicy.nccrcg.org\/wp-json\/wp\/v2\/media\/570"}],"wp:attachment":[{"href":"https:\/\/geneticspolicy.nccrcg.org\/wp-json\/wp\/v2\/media?parent=2439"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/geneticspolicy.nccrcg.org\/wp-json\/wp\/v2\/tags?post=2439"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}