Name,Link,Organization,Subject,Date,"Other Organization","Other Subjects","Submitter Name","Submitter Email" "Confronting Racism, Oppression, & Inequity in Genetic & Genomic Medicine",https://www.nsgc.org/Policy-Research-and-Publications/Position-Statements/Position-Statements/Post/confronting-racism-oppression-inequity-in-genetic-genomic-medicine,"National Society of Genetic Counselors (NSGC)",Diversity,"April 26, 2022",,,, "Providing Input on the Common Rule",https://www.ashg.org/wp-content/uploads/2011/10/PS-201110.pdf,"American Society of Human Genetics (ASHG)","Genetic Research,Informed Consent","October 11, 2011",,,, "Stem Cell Research",https://pubmed.ncbi.nlm.nih.gov/23430401/,"National Society of Genetic Counselors (NSGC)","Genetic Research","June 1, 2012",,,, "Genetic Biobanking for Research",https://www.isong.org/resources/Documents/PS_Genetic%20Biobanking%20for%20Research%20Position%20Statement_February%202013.pdf,"International Society of Nurses in Genetics (ISONG)","Genetic Research","February 1, 2013",,,, "Sign-on letter to the Response to the NIH Draft Genomic Data Sharing (GDS) Policy",https://geneticalliance.org/pdf/policy/Sign-on-to-NIH-Response-Genomic-Data-Sharing.pdf,"Genetic Alliance","Genetic Privacy,Genetic Research","November 20, 2013",,,, "Response to the NIH draft Genomic Data Sharing (GDS) policy",https://geneticalliance.org/pdf/policy/Sign-on-to-NIH-Response-Genomic-Data-Sharing.pdf,"Genetic Alliance","Genetic Privacy,Genetic Research","November 20, 2013",,,, "Human Cloning By Somatic Cell Nuclear Transfer (SCNT) For Reproductive or Therapeutic Purposes",https://www.nsgc.org/Policy-Research-and-Publications/Position-Statements/Position-Statements/Post/human-cloning-by-somatic-cell-nuclear-transfer-scnt-for-reproductive-or-therapeutic-purposes,"National Society of Genetic Counselors (NSGC)","Genetic Research","March 19, 2014",,,, "Comments on NPRM Amendments to the Common Rule",https://geneticalliance.org/pdf/policy/Common-Rule-NPRM-Response.pdf,"Genetic Alliance","Genetic Research","February 2, 2015",,,, "Clinical Data Sharing",https://www.nsgc.org/Policy-Research-and-Publications/Position-Statements/Position-Statements/Post/clinical-data-sharing,"National Society of Genetic Counselors (NSGC)","Genetic Research,Genetic Privacy","November 25, 2020",,,, "Supporting Research Participant Privacy",https://www.ashg.org/publications-news/press-releases/201612-century-cures-act/,"American Society of Human Genetics (ASHG)","Genetic Privacy,Genetic Research,Legal","June 30, 2015",,,, "NGS-based In Vitro Diagnostics",https://www.ashg.org/wp-content/uploads/2015/12/PS-201610-2.pdf,"American Society of Human Genetics (ASHG)","Genetic Testing,Genetic Research,Genetic Counselors","December 1, 2015",,,, "Human Gene Patenting",https://www.nsgc.org/POLICY/Position-Statements/Position-Statements/Post/human-gene-patenting,"National Society of Genetic Counselors (NSGC)","Genetic Research","April 16, 2019",,,, "Human Germline Editing",https://www.nsgc.org/Policy-Research-and-Publications/Position-Statements/Position-Statements/Post/human-germline-editing-1,"National Society of Genetic Counselors (NSGC)","Genetic Research","June 15, 2023",,,, "Human Germline Genome Editing",https://www.cell.com/ajhg/fulltext/S0002-9297(17)30247-1,"American Society of Human Genetics (ASHG)","Gene Editing,Genetic Research","August 3, 2017",,,, "Professional responsibilities regarding the provision, publication, and dissemination of patient phenotypes in the context of clinical genetic and genomic testing: points to consider—a statement of the American College of Medical Genetics and Genomics (ACMG)",https://www.acmg.net/PDFLibrary/Patient-Phenotypes-Professional-Responsibilities.pdf,"American College of Medical Genetics and Genomics (ACMG)","Clinical Care,Genetic Research","January 11, 2018",,,, "The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research Results",https://www.cell.com/ajhg/fulltext/S0002-9297(19)30070-9,"American Society of Human Genetics (ASHG)","Genetic Testing,Legal,Genetic Research,Secondary Findings","April 4, 2019",,,, "Advancing Research and Privacy Protections",https://www.ashg.org/advocacy/statement-archive/advancing-research-privacy-protections/,"American Society of Human Genetics (ASHG)","Genetic Privacy,Genetic Research","September 5, 2019",,,, "Supporting Geneticists in Advocating for Research",https://www.ashg.org/advocacy/statement-archive/advocating-for-research/,"American Society of Human Genetics (ASHG)","Genetic Research","February 18, 2020",,,, "Letter to NIH on funding for Model Organism Databases",https://genetics-gsa.org/wp-content/uploads/2021/03/MOD-letter_for_NIH_032521.pdf,"Genetics Society of America","Funding,Genetic Research","March 1, 2021",,,, "GSA’s commitment to dismantling racism in science: building a plan for sustained action",https://genestogenomes.org/gsas-commitment-to-dismantling-racism-in-science/?category=news,"Genetics Society of America","Diversity,Discrimination","June 16, 2020",,,, "Value to Whom? Incorporating Patient Perspectives into Value Assessment for Novel Cell and Gene Therapies",https://everylifefoundation.org/wp-content/uploads/2020/09/Value-for-Whom_Aug2020.pdf,"EveryLife Foundation for Rare Diseases","Genetic Research","August 1, 2020",,,, "Advancing Diverse Participation in Research",https://www.ashg.org/advocacy/statement-archive/advancing-diverse-participation-in-research/,"American Society of Human Genetics (ASHG)","Genetic Research,Diversity","September 3, 2020",,,, "Statement Regarding Concepts of “Good Genes” and Human Genetics",https://www.ashg.org/publications-news/ashg-news/statement-regarding-good-genes-human-genetics/,"American Society of Human Genetics (ASHG)","Discrimination,Diversity","September 24, 2020",,,,