Name,Link,Organization,Subject,Date,"Other Organization","Other Subjects","Submitter Name","Submitter Email" "Privacy and Confidentiality of Genetic Information: the Role of the Nurse",https://www.isong.org/resources/Documents/ISONG%20Position%20Statement_Privacy%20and%20Confidentiality%20of%20Genetic%20Information%20approved%20May%201%202018.pdf,"International Society of Nurses in Genetics (ISONG)","Genetic Privacy","April 5, 2010",,,, "Comments on the Implementation of GINA",https://www.ashg.org/wp-content/uploads/2008/11/Comments-20081812-response-to-request-in-GINA.pdf,"American Society of Human Genetics (ASHG)","Discrimination,Genetic Testing,Genetic Privacy","December 18, 2008",,,, Nondiscrimination,https://www.nsgc.org/p/bl/et/blogaid=32,"National Society of Genetic Counselors (NSGC)","Discrimination,Genetic Privacy","June 1, 2011",,,, "Supporting Research Participant Privacy",https://www.ashg.org/publications-news/press-releases/201612-century-cures-act/,"American Society of Human Genetics (ASHG)","Genetic Privacy,Genetic Research,Legal","June 30, 2015",,,, "Joint Letter to Congress in Support of Genetic Information Non-discrimination Act (GINA)",https://medialib.aafp.org/dam/AAFP/documents/advocacy/prevention/strategy/LT-Con-GINA-042115.pdf,"American Academy of Family Physicians (AAFP)","Genetic Privacy,Legal,Discrimination","April 21, 2015",,,, "Clinical Data Sharing",https://www.nsgc.org/Policy-Research-and-Publications/Position-Statements/Position-Statements/Post/clinical-data-sharing,"National Society of Genetic Counselors (NSGC)","Genetic Research,Genetic Privacy","November 25, 2020",,,, "Response to the NIH draft Genomic Data Sharing (GDS) policy",https://geneticalliance.org/pdf/policy/Sign-on-to-NIH-Response-Genomic-Data-Sharing.pdf,"Genetic Alliance","Genetic Privacy,Genetic Research","November 20, 2013",,,, "Sign-on letter to the Response to the NIH Draft Genomic Data Sharing (GDS) Policy",https://geneticalliance.org/pdf/policy/Sign-on-to-NIH-Response-Genomic-Data-Sharing.pdf,"Genetic Alliance","Genetic Privacy,Genetic Research","November 20, 2013",,,, "Comments on Proposed Rule, Amendments to regulations under the Genetic Information Nondiscrimination Act of 2008, RIN 3046-AB02",https://geneticalliance.org/pdf/policy/01282016-Genetic_Alliance_GINA_NPRM_Comments.pdf,"Genetic Alliance","Genetic Privacy,Workplace,Legal","January 28, 2016",,,, "Blood Spot Storage and Use",https://www.nsgc.org/Policy-Research-and-Publications/Position-Statements/Position-Statements/Post/blood-spot-storage-and-use,"National Society of Genetic Counselors (NSGC)","Newborn Screening,Genetic Privacy","November 15, 2022",,,, "Workplace Wellness Programs",https://www.nsgc.org/POLICY/Position-Statements/Position-Statements/Post/workplace-wellness-programs,"National Society of Genetic Counselors (NSGC)","Discrimination,Genetic Privacy","September 13, 2017",,,, "Protecting Genetic Privacy in Law Enforcement",https://www.ashg.org/wp-content/uploads/2017/03/Statement-20170203-Collection-and-use-of-genetic-information-Law-Enforcement.pdf,"American Society of Human Genetics (ASHG)","Genetic Privacy,Legal","March 2, 2017",,,, "Prohibiting Genetic Discrimination",https://www.ashg.org/advocacy/statement-archive/2019-genetic-discrimination/,"American Society of Human Genetics (ASHG)","Discrimination,Genetic Privacy","January 2, 2019",,,, "Advancing Research and Privacy Protections",https://www.ashg.org/advocacy/statement-archive/advancing-research-privacy-protections/,"American Society of Human Genetics (ASHG)","Genetic Privacy,Genetic Research","September 5, 2019",,,, "At-Home Genetic Testing Position Statement",https://www.nsgc.org/Policy-Research-and-Publications/Position-Statements/Position-Statements/Post/at-home-genetic-testing-position-statement,"National Society of Genetic Counselors (NSGC)","Direct-to-Consumer Testing,Genetic Privacy","June 24, 2023",,,, "Stewardship of patient genomic data: A policy statement of the American College of Medical Genetics and Genomics (ACMG)",https://www.acmg.net/PDFLibrary/Stewardship_of_genomic_data.pdf,"American College of Medical Genetics and Genomics (ACMG)","Genetic Privacy","October 29, 2021",,,,