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X-ORIGINAL-URL:https://geneticspolicy.nccrcg.org
X-WR-CALDESC:Events for Genetics Policy Hub
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230926T140000
DTEND;TZID=America/New_York:20230926T140000
DTSTAMP:20260416T071122
CREATED:20230913T173121Z
LAST-MODIFIED:20230913T173148Z
UID:3874-1695736800-1695736800@geneticspolicy.nccrcg.org
SUMMARY:Genetics Policy Hub Webinar Series- Newborn Screening
DESCRIPTION:On September 26\, 2023\, at 2 PM ET\, the fourth Genetics Policy Hub webinar will be held to share the latest policy information related to newborn screening and to celebrate Newborn Screening Awareness Month! Join us for this free one-hour webinar to: \n\n\n\n\nExplain the current ways in which newborn screening policy is set across the United States;\n\n\n\nDescribe how you can find information about newborn screening policy in the Genetics Policy Hub; and\n\n\n\nIdentify new and emerging policy trends in newborn screening.
URL:https://geneticspolicy.nccrcg.org/event/genetics-policy-hub-webinar-series-newborn-screening/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2023/09/GPH-NBS.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230714T120000
DTEND;TZID=America/New_York:20230714T130000
DTSTAMP:20260416T071122
CREATED:20220831T192852Z
LAST-MODIFIED:20220831T192908Z
UID:3386-1689336000-1689339600@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series%ef%bf%bc-7/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230609T120000
DTEND;TZID=America/New_York:20230609T130000
DTSTAMP:20260416T071122
CREATED:20220831T192617Z
LAST-MODIFIED:20220831T192716Z
UID:3382-1686312000-1686315600@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series%ef%bf%bc-6/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230512T120000
DTEND;TZID=America/New_York:20230512T130000
DTSTAMP:20260416T071122
CREATED:20220831T192334Z
LAST-MODIFIED:20220831T192427Z
UID:3379-1683892800-1683896400@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series%ef%bf%bc-5/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230414T120000
DTEND;TZID=America/New_York:20230414T130000
DTSTAMP:20260416T071122
CREATED:20220831T192147Z
LAST-MODIFIED:20220831T193241Z
UID:3377-1681473600-1681477200@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series%ef%bf%bc-4/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230412T140000
DTEND;TZID=America/New_York:20230412T150000
DTSTAMP:20260416T071122
CREATED:20230405T162406Z
LAST-MODIFIED:20230405T162406Z
UID:3675-1681308000-1681311600@geneticspolicy.nccrcg.org
SUMMARY:Arizona Telemedicine Program Webinar Series | Navigating Telehealth Legislative and Policy Changes Beyond the Public Health Emergency
DESCRIPTION:The practice and delivery of health care is changing with an emphasis on improving quality\, safety\, efficiency and access to care. Telemedicine can help you achieve these goals! The Arizona Telemedicine Program and Southwest Telehealth Resource Center invite you to a free one-hour CME webinar on the implementation and practice of telemedicine. \n\n\n\nNavigating Telehealth Legislative and Policy Changes Beyond the Public Health Emergency \n\n\n\nJoin us to learn about the latest in telehealth legislation and policy changes. \n\n\n\nThis webinar is made possible through funding provided by Health Resources and Services Administration\, Office for the Advancement of Telehealth (U1U42527). \n\n\n\n \n\n\n\nSpeakers: \n\n\n\nTara Sklar\, JD\, MPH \n\n\n\nFaculty Director \n\n\n\nArizona Law \n\n\n\nSklar is the faculty director of the Health Law & Policy Program at Arizona Law. She also holds appointments as senior advisor for Telehealth Law & Policy with the Arizona Telemedicine Program and for Innovations in Healthy Aging with the University of Arizona Health Sciences. Sklar currently serves as a telehealth policy consultant with the Department of Health and Human Services\, Health Resources & Services Administration in the Office for the Advancement of Telehealth.
URL:https://geneticspolicy.nccrcg.org/event/arizona-telemedicine-program-webinar-series-navigating-telehealth-legislative-and-policy-changes-beyond-the-public-health-emergency/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2023/04/atp_swtrc_logo_file_white_background_14.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230404T120000
DTEND;TZID=America/New_York:20230404T120000
DTSTAMP:20260416T071122
CREATED:20230309T175340Z
LAST-MODIFIED:20230309T175340Z
UID:3592-1680609600-1680609600@geneticspolicy.nccrcg.org
SUMMARY:Genetics Policy Hub Webinar Series: Medical Foods
DESCRIPTION:On April 4 at 12 PM ET\, Genetics Policy Hub is partnering with the Southeast Regional Genetics Networks (SERN) to share the latest information about medical foods coverage from across the United States. By joining the webinar\, you will: \n\n\n\nDescribe the importance of medical foods coverage.Identify current policies related to medical foodsApply lessons in improving medical foods coverage in your work.\n\n\n\n \n\n\n\nSpeakers: \n\n\n\nRani Singh\, PhD\, RD\, LDSERN Project DirectorProfessor\, Emory University \n\n\n\nMegan Lyon\, MPHNCC Co-Project Director
URL:https://geneticspolicy.nccrcg.org/event/genetics-policy-hub-webinar-series-medical-foods/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230310T120000
DTEND;TZID=America/New_York:20230310T130000
DTSTAMP:20260416T071122
CREATED:20220831T191926Z
LAST-MODIFIED:20220831T193216Z
UID:3374-1678449600-1678453200@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series-4/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230308T130000
DTEND;TZID=America/New_York:20230308T140000
DTSTAMP:20260416T071122
CREATED:20230307T201859Z
LAST-MODIFIED:20230307T201900Z
UID:3585-1678280400-1678284000@geneticspolicy.nccrcg.org
SUMMARY:Paid Family Caregiving for Children with Medical Complexity and Disabilities
DESCRIPTION:Edit Event \n\n\n\n\n\n\n\n\n\n\n\n \n\n\n\nPediatric Home Health care is in crisis. Children with medical complexity require a substantial amount of medical care and activities-of-daily-living support to live at home. However\, due to a shrinking pool of available home health care workers and narrow state eligibility requirements for services\, most of their care is increasingly delivered by families without pay. In response\, the option to pay family caregivers for their children’s medical labor is gaining national traction. This webinar will provide a brief overview of laws that govern care for this population and then spotlight specific models of paid family caregiving and how they have been recently expanded in several states. Join us to explore a policy solution to pay families to provide home health care to their children with medical complexity and disabilities. Live captioning will be available. \n\n\n\nSpeakers\n\n\n\nCara Coleman\, JD\, MPH \n\n\n\nFamily Voices \n\n\n\nCara Coleman works for Family Voices National and is the author of “I am Justice\, Hear Me Roar” about her daughter\, Justice\, with medical complexity and disabilities. She is Associate Editor for Family Partnerships\, Executive Editorial Board of Pediatrics. In the past\, Cara has worked as an adult health specialist\, a case manager for homeless pregnant women\, a counselor in a shelter for battered women\, a law clerk for a judge\, an immigration subject matter consultant\, and an attorney serving low-income immigrants. \n\n\n\nCarolyn Foster\, MD\, MS \n\n\n\nNorthwestern University/Lurie Children’s Hospital of Chicago \n\n\n\nDr. Carolyn Foster is an Assistant Professor of Pediatrics at Northwestern University Feinberg School of Medicine and an attending physician at Ann & Robert H. Lurie Children’s Hospital of Chicago in primary and complex care. As a primary investigator of the Foster Health Lab\, she holds both NIH and foundation funding to improve home and community-based services for children with medical complexity and their families\, with research that spans intervention development\, factors affecting patient and family wellbeing\, and how state-level policies impact care provision. The Foster Health Lab’s mission is to improve the health of children with medical complexity\, while reducing health-care related stress for their families\, through family-partnered research and innovative clinical programming. \n\n\n\nNannette Salasek \n\n\n\nHealth Care Systems Administrator\, Raising Special Kids \n\n\n\nFor 14 years Nannette Salasek has worked at Raising Special Kids as the Health Care Systems Administrator\, providing families support\, and training medical professionals on the principles of Family Centered Care and how to best care for families that have children with special health care needs. In addition to her work at Raising Special Kids\, Nannette is a licensed Social Worker and serves on the Family Advisory Council at Phoenix Children’s Hospital. \n\n\n\nNannette and her husband have 6 beautiful children. Their lives were changed forever when their third child was born with Spina Bifida. Annie\, now 19 years old\, is a happy and independent young lady who bravely takes on the many challenges of living with Spina Bifida. Nannette is passionate about providing support to families and letting them know they are not alone in the journey of advocacy for their children with special needs. \n\n\n\nBill Sczepanski \n\n\n\nVP\, Government Relations\, Team Select Home Care \n\n\n\nBorn and raised in St. Louis\, Missouri\, Bill Sczepanski has over a decade of legislative experience in the home health space and has worked in the home care industry for nearly twenty years. Currently residing in Phoenix\, Arizona\, Bill is the Vice President of Government Relations with Team Select Home Care. In his current role\, Bill works closely with the President/CEO of Team Select Home Care\, parents\, providers\, and legislators to create change for medically fragile families deserving quality care at home. Bill is well-versed in Medicare\, Medicaid\, Accreditation Commission for Health Care (ACHC)\, Health Insurance Portability and Accountability Act (HIPAA)\, Community Health Accreditation Partner (CHAP)\, Joint Commission on Accreditation of Healthcare Organizations (JCAHO)\, and Occupational Health and Safety Administration (OSHA) regulations. He is proud to be a resource for others around him.
URL:https://geneticspolicy.nccrcg.org/event/paid-family-caregiving-for-children-with-medical-complexity-and-disabilities/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230210T120000
DTEND;TZID=America/New_York:20230210T130000
DTSTAMP:20260416T071122
CREATED:20220831T191653Z
LAST-MODIFIED:20220831T193154Z
UID:3370-1676030400-1676034000@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series%ef%bf%bc-3/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230113T120000
DTEND;TZID=America/New_York:20230113T130000
DTSTAMP:20260416T071122
CREATED:20220831T191528Z
LAST-MODIFIED:20220831T193126Z
UID:3368-1673611200-1673614800@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series-2/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221209T120000
DTEND;TZID=America/New_York:20221209T130000
DTSTAMP:20260416T071122
CREATED:20220831T191244Z
LAST-MODIFIED:20220831T193101Z
UID:3365-1670587200-1670590800@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-forum-seminar-series/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221111T120000
DTEND;TZID=America/New_York:20221111T130000
DTSTAMP:20260416T071122
CREATED:20220831T191000Z
LAST-MODIFIED:20220831T193038Z
UID:3359-1668168000-1668171600@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series%ef%bf%bc-2/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221028T140000
DTEND;TZID=America/New_York:20221028T150000
DTSTAMP:20260416T071122
CREATED:20221014T164445Z
LAST-MODIFIED:20221014T164504Z
UID:3401-1666965600-1666969200@geneticspolicy.nccrcg.org
SUMMARY:Telehealth Policy Webinar Series: Federal Policy & Telehealth: What to be Aware of Going Forward
DESCRIPTION:Back by popular demand!  CCHP will be hosting another webinar series on telehealth policy at the end of October. Webinars will take place each Friday over a two-week period. Registration is now open for both webinars! \n\n\n\nThis webinar series is FREE of charge for all who wish to attend and each session will be closed captioned.   \n\n\n\nAs we start to wind down from the pandemic\, what will the federal telehealth policy landscape look like going forward\, and what should those interested in telehealth be aware of as far as policies impacting its use?  Join us as we examine the various issues that policymakers will face as we move towards more permanent policy for telehealth on the federal level. \n\n\n\nConfirmed Speakers:John W. Gordon\, Office of Evaluation and Inspections\, Office of the Inspector GeneralMei Wa Kwong\, Executive Director\, Center for Connected Health Policy
URL:https://geneticspolicy.nccrcg.org/event/telehealth-policy-webinar-series-federal-policy-telehealth-what-to-be-aware-of-going-forward/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/10/CCHP-National-Telehealth-Policy-Resource-Center-Logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221021T140000
DTEND;TZID=America/New_York:20221021T150000
DTSTAMP:20260416T071122
CREATED:20221014T163803Z
LAST-MODIFIED:20221014T163804Z
UID:3397-1666360800-1666364400@geneticspolicy.nccrcg.org
SUMMARY:Telehealth Policy Webinar Series: Crossing State Lines
DESCRIPTION:Back by popular demand!  CCHP will be hosting another webinar series on telehealth policy at the end of October. Webinars will take place each Friday over a two-week period. Registration is now open for both webinars! \n\n\n\nThis webinar series is FREE of charge for all who wish to attend and each session will be closed captioned.   \n\n\n\nWhile telehealth may eliminate issues such as distance barriers\, providers still face a number of policies that they will have to navigate as they provide services across state lines. In the first webinar for CCHP’s Fall 2022 State Policy Webinar Series\, our panel of expert speakers will discuss various issues that providers should be aware of when they provide services in another state. \n\n\n\nConfirmed Speakers:Kimberly Horvath\, JD\, Senior Attorney\, American Medical AssociationJeremy Sherer\, JD\, Hooper\, Lundy & Bookman\, PCKathy Wibberly\, PhD\, Director\, Mid-Atlantic Telehealth Resource Center
URL:https://geneticspolicy.nccrcg.org/event/telehealth-policy-webinar-series-crossing-state-lines/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20221014T120000
DTEND;TZID=America/New_York:20221014T130000
DTSTAMP:20260416T071122
CREATED:20220831T190619Z
LAST-MODIFIED:20220831T192937Z
UID:3354-1665748800-1665752400@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series
DESCRIPTION:ELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page.
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series/
ATTACH;FMTTYPE=image/png:https://geneticspolicy.nccrcg.org/wp-content/uploads/2022/08/ELSIhubCERA-logo-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220909T120000
DTEND;TZID=America/New_York:20220909T130000
DTSTAMP:20260416T071122
CREATED:20220831T190200Z
LAST-MODIFIED:20220831T190648Z
UID:3348-1662724800-1662728400@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum Seminar Series - Decoloniality and Genetic Ancestry: Situating the “African Genome”
DESCRIPTION:ELSI Friday Forum – September 9\, 2022 – Decoloniality and Genetic Ancestry: Situating the “African Genome” \n\n\n\nAlice Matimba\, PhD\, MS (Wellcome Connecting Science)Palwendé R. Boua\, PhD (Institut de Recherche en Sciences de la Santé-DRCO\, Burkina Faso)Moderated by Henri-Michel Yéré\, PhD\, MA (University of Basel)\n\n\n\n \n\n\n\nELSI Friday Forum is a monthly one-hour seminar series featuring topics on the ethical\, legal\, and social implications (ELSI) of genetics and genomics research.  Join us from 12:00-1:00pm ET / 9:00-10:00am PT on the second Friday of each month for talks and panels on a broad array of issues\, explored through an ELSI lens. \n\n\n\nEach hour-long forum will be immediately followed by a half-hour informal networking session for audience members who would like to continue the discussion.  A zoom link to the networking session will be provided in the Zoom Chat before the end of each forum and emailed to all registrants. \n\n\n\nEach forum will end with a Q&A with the audience and speakers: please bring your questions\, expertise\, and opinions to the debate!  For those who cannot attend the live event\, each session will be recorded and archived on the ELSIhub Video page (recording links are also available below).
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-seminar-series%ef%bf%bc/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220817T140000
DTEND;TZID=America/New_York:20220817T150000
DTSTAMP:20260416T071122
CREATED:20220809T163431Z
LAST-MODIFIED:20220809T163855Z
UID:3328-1660744800-1660748400@geneticspolicy.nccrcg.org
SUMMARY:Genetics Pop-Up: VUS Video Premiere
DESCRIPTION:Join MSRGN to learn more about genetics! Experience a safe arena to ask questions\, learn about resources\, watch the video about Variants of Uncertain Significance (VUS’s) and connect with others who have explored genetics for their own loved ones. \n\n\n\nAt this virtual event on August 17\, 2022 MSRGN will be premiering our Genetics Explained: Variants of Uncertain Significance (VUS) video for families and providers! You won’t want to miss the premiere of this valuable resource in understanding genetics.
URL:https://geneticspolicy.nccrcg.org/event/genetics-pop-up-vus-video-premiere/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220629T150000
DTEND;TZID=America/New_York:20220629T160000
DTSTAMP:20260416T071122
CREATED:20220613T174819Z
LAST-MODIFIED:20220613T174837Z
UID:3255-1656514800-1656518400@geneticspolicy.nccrcg.org
SUMMARY:Medical Necessity Webinar Series Part 3- Practical Application of Medical Necessity: Understanding Prior Authorization Process\, Requesting Authorizations\, and Denials and Appeals
DESCRIPTION:Wednesday\, June 29\, 3:00 – 4:00 pm ETMedical Necessity Webinar Series Part 3- Practical Application of Medical Necessity: Understanding Prior Authorization Process\, Requesting Authorizations\, and Denials and Appeals. \n\n\n\nCourse Description: \n\n\n\nThe Catalyst Center and the National Coordinating Center for the Regional Genetics Networks\, two programs supported by the Health Resources and Services Administration\, are pleased to announce a three-part webinar series to help the genetics community better understand how they can navigate medical necessity. This webinar series will provide information about medical necessity through the lens of genetic cases. \n\n\n\nLearning Objectives: \n\n\n\nAt the conclusion of this session\, participants should be able to: \n\n\n\nExplain what it means when a prior authorization is deniedIdentify where to begin the appeal processList the steps in the process for an appealDescribe options if an appeal is denied\n\n\n\nTarget Audience: \n\n\n\nHealthcare Providers\, Public Health Professionals\, Individuals/Families
URL:https://geneticspolicy.nccrcg.org/event/medical-necessity-webinar-series-part-3-practical-application-of-medical-necessity-understanding-prior-authorization-process-requesting-authorizations-and-denials-and-appeals%ef%bf%bc/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220624T140000
DTEND;TZID=America/New_York:20220624T153000
DTSTAMP:20260416T071122
CREATED:20220506T144722Z
LAST-MODIFIED:20220506T144723Z
UID:3238-1656079200-1656084600@geneticspolicy.nccrcg.org
SUMMARY:Medicaid & State Telehealth Policy: Summer 2022 Webinar Series - Session 4: Medicaid Telehealth Policy & Substance Use Disorder
DESCRIPTION:Responding to continued requests\, CCHP is hosting another webinar series on state telehealth policy. Webinars will take place every Friday over a four-week period in June 2022. The series will cover school-based telehealth\, state licensure impacts on telehealth\, telehealth private payer laws\, and Medicaid telehealth policy & substance use disorder. \n\n\n\nThis webinar series is FREE of charge for all who wish to attend and each session will be closed captioned.  CONFIRMED SPEAKERS:Robert Baillieu\, MD\, MPH\, FAAFPPhysician and Senior Clinical and Practice AdvisorSAMHSA/CSAT/ODRepresentative David BentzDelaware House of Representatives\, 18th DistrictChristie GuinnNAME Governmental Affairs Committee Chair\, Deputy Bureau Chief\, Exempt Services & Program Bureau\, Medical Assistance DivisionNew Mexico Human Services DepartmentChelsey Matter\, RRT\, MPHExecutive DirectorGovernment Programs Health IntegrationBlue Cross Blue Shield of North DakotaCommissioner Glen MulreadyOklahoma Insurance CommissionerJanet P. Orwig\, MBA\, CAEExecutive DirectorPSYPACTLisa A. RobinChief Advocacy OfficerFederation of State Medical BoardsAndrea Shore\, MPHChief Program Officer School-Based Health AllianceSESSION 4: Medicaid Telehealth Policy & Substance Use DisorderFriday\, June 24\, 2022 | 11:00 AM -12:30 PM PTIn addition to COVID-19\, the United States faces another public health crisis: the opioid epidemic. During COVID-19 some substance use disorder (SUD) patients also found themselves cut off from care. Telehealth was used to help alleviate some of these access issues. This webinar will focus on how some state Medicaid programs addressed the use of telehealth to treat SUD.
URL:https://geneticspolicy.nccrcg.org/event/medicaid-state-telehealth-policy-summer-2022-webinar-series-session-4-medicaid-telehealth-policy-substance-use-disorder/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220617T140000
DTEND;TZID=America/New_York:20220617T153000
DTSTAMP:20260416T071122
CREATED:20220506T144450Z
LAST-MODIFIED:20220506T144451Z
UID:3234-1655474400-1655479800@geneticspolicy.nccrcg.org
SUMMARY:Medicaid & State Telehealth Policy: Summer 2022 Webinar Series – Session 3: Telehealth Private Payer Laws
DESCRIPTION:Responding to continued requests\, CCHP is hosting another webinar series on state telehealth policy. Webinars will take place every Friday over a four-week period in June 2022. The series will cover school-based telehealth\, state licensure impacts on telehealth\, telehealth private payer laws\, and Medicaid telehealth policy & substance use disorder. \n\n\n\nThis webinar series is FREE of charge for all who wish to attend and each session will be closed captioned.  CONFIRMED SPEAKERS:Robert Baillieu\, MD\, MPH\, FAAFPPhysician and Senior Clinical and Practice AdvisorSAMHSA/CSAT/ODRepresentative David BentzDelaware House of Representatives\, 18th DistrictChristie GuinnNAME Governmental Affairs Committee Chair\, Deputy Bureau Chief\, Exempt Services & Program Bureau\, Medical Assistance DivisionNew Mexico Human Services DepartmentChelsey Matter\, RRT\, MPHExecutive DirectorGovernment Programs Health IntegrationBlue Cross Blue Shield of North DakotaCommissioner Glen MulreadyOklahoma Insurance CommissionerJanet P. Orwig\, MBA\, CAEExecutive DirectorPSYPACTLisa A. RobinChief Advocacy OfficerFederation of State Medical BoardsAndrea Shore\, MPHChief Program Officer School-Based Health AllianceSESSION 3: Telehealth Private Payer LawsFriday\, June 17\, 2022 | 11:00 AM -12:30 PM PT The majority of states have passed laws impacting private health plans’ coverage of telehealth-delivered services. This webinar will focus on the path of these laws by looking at how one came into being via legislation\, how a health plan implements the requirements\, and other reactions to such a policy including how regulatory entities look to enforce the laws.
URL:https://geneticspolicy.nccrcg.org/event/medicaid-state-telehealth-policy-summer-2022-webinar-series-session-3-telehealth-private-payer-laws/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220614T150000
DTEND;TZID=America/New_York:20220614T150000
DTSTAMP:20260416T071122
CREATED:20220526T141319Z
LAST-MODIFIED:20220526T141510Z
UID:3246-1655218800-1655218800@geneticspolicy.nccrcg.org
SUMMARY:Medicaid 101 Webinar
DESCRIPTION:As the single largest source of health coverage for Children and Youth with Special Health Care Needs (CYSCHN)\, with robust benefits and cost-sharing limits\, Medicaid provides critical coverage of health care services to CYSHCN. State Title V programs are uniquely positioned to collaborate with Medicaid to promote access to the system of services for CYSHCN. The Catalyst Center is hosting a webinar on June 14\, 2022\, at 3 pm ET (12 pm PT) that will present foundational knowledge about Medicaid for Title V staff and their allies. Catalyst Center staff will explain the basics of Medicaid including the eligibility pathways to Medicaid coverage for kids\, and a benefit unique to Medicaid called EPSDT that is crucial for access to care for CYSHCN. This webinar is open to the public.
URL:https://geneticspolicy.nccrcg.org/event/medicaid-101-webinar/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220610T140000
DTEND;TZID=America/New_York:20220610T153000
DTSTAMP:20260416T071122
CREATED:20220506T144157Z
LAST-MODIFIED:20220506T144833Z
UID:3231-1654869600-1654875000@geneticspolicy.nccrcg.org
SUMMARY:Medicaid & State Telehealth Policy: Summer 2022 Webinar Series - Session 2: State Licensure
DESCRIPTION:Responding to continued requests\, CCHP is hosting another webinar series on state telehealth policy. Webinars will take place every Friday over a four-week period in June 2022. The series will cover school-based telehealth\, state licensure impacts on telehealth\, telehealth private payer laws\, and Medicaid telehealth policy & substance use disorder. This webinar series is FREE of charge for all who wish to attend and each session will be closed captioned.  CONFIRMED SPEAKERS: Robert Baillieu\, MD\, MPH\, FAAFPPhysician and Senior Clinical and Practice AdvisorSAMHSA/CSAT/ODRepresentative David BentzDelaware House of Representatives\, 18th DistrictChristie GuinnNAME Governmental Affairs Committee Chair\, Deputy Bureau Chief\, Exempt Services & Program Bureau\, Medical Assistance DivisionNew Mexico Human Services DepartmentChelsey Matter\, RRT\, MPHExecutive DirectorGovernment Programs Health IntegrationBlue Cross Blue Shield of North DakotaCommissioner Glen MulreadyOklahoma Insurance CommissionerJanet P. Orwig\, MBA\, CAEExecutive DirectorPSYPACTLisa A. RobinChief Advocacy OfficerFederation of State Medical BoardsAndrea Shore\, MPHChief Program Officer School-Based Health AllianceSESSION 2: State LicensureFriday\, June 10\, 2022 | 11:00 AM -12:30 PM PT Licensure has often been cited as a barrier to the use of telehealth. With the possibility of COVID waivers expiring\, the exemptions given to licensing requirements are beginning to disappear. This webinar will focus in on what the post-PHE landscape will look like and what are some of the methods that are being utilized to address the licensure issue.
URL:https://geneticspolicy.nccrcg.org/event/medicaid-state-telehealth-policy-summer-2022-webinar-series-session-2-state-licensure/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220603T140000
DTEND;TZID=America/New_York:20220603T153000
DTSTAMP:20260416T071122
CREATED:20220506T143523Z
LAST-MODIFIED:20220506T144814Z
UID:3225-1654264800-1654270200@geneticspolicy.nccrcg.org
SUMMARY:Medicaid & State Telehealth Policy: Summer 2022 Webinar Series - Session 1:  Telehealth & School-Based Programs
DESCRIPTION:Responding to continued requests\, CCHP is hosting another webinar series on state telehealth policy. Webinars will take place every Friday over a four-week period in June 2022. The series will cover school-based telehealth\, state licensure impacts on telehealth\, telehealth private payer laws\, and Medicaid telehealth policy & substance use disorder. This webinar series is FREE of charge for all who wish to attend and each session will be closed captioned.  CONFIRMED SPEAKERS:Robert Baillieu\, MD\, MPH\, FAAFPPhysician and Senior Clinical and Practice AdvisorSAMHSA/CSAT/ODRepresentative David BentzDelaware House of Representatives\, 18th DistrictChristie GuinnNAME Governmental Affairs Committee Chair\, Deputy Bureau Chief\, Exempt Services & Program Bureau\, Medical Assistance DivisionNew Mexico Human Services DepartmentChelsey Matter\, RRT\, MPHExecutive DirectorGovernment Programs Health IntegrationBlue Cross Blue Shield of North DakotaCommissioner Glen MulreadyOklahoma Insurance CommissionerJanet P. Orwig\, MBA\, CAEExecutive DirectorPSYPACTLisa A. RobinChief Advocacy OfficerFederation of State Medical BoardsAndrea Shore\, MPHChief Program Officer School-Based Health AllianceSESSION 1:  Telehealth & School-Based ProgramsFriday\, June 3\, 2022 | 11:00 AM -12:30 PM PTThis webinar will focus on the use of telehealth to deliver services in a school-based program. Learn how Medicaid and Education departments work together to ensure children receive the services they need.
URL:https://geneticspolicy.nccrcg.org/event/medicaid-state-telehealth-policy-summer-2022-webinar-series-session-1-telehealth-school-based-programs/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220520T130000
DTEND;TZID=America/New_York:20220520T140000
DTSTAMP:20260416T071122
CREATED:20220506T181858Z
LAST-MODIFIED:20220506T181947Z
UID:3242-1653051600-1653055200@geneticspolicy.nccrcg.org
SUMMARY:Medical Necessity Webinar Series Part 2 - Medicaid and Early and Periodic Screening\, Diagnosis\, and Treatment (EPSDT)- The Title V and Medicaid Relationship
DESCRIPTION:May 20\, 1:00 – 2:00 pm ETMedical Necessity Webinar Series Part 2 – Medicaid and Early and Periodic Screening\, Diagnosis\, and Treatment (EPSDT)- The Title V and Medicaid Relationship \n\n\n\nCourse Description: \n\n\n\nThe Catalyst Center and the National Coordinating Center for the Regional Genetics Networks\, two programs supported by the Health Resources and Services Administration\, are pleased to announce a three-part webinar series to help the genetics community better understand how they can navigate medical necessity. This webinar series will provide information about medical necessity through the lens of genetic cases. \n\n\n\nLearning Objectives: \n\n\n\nAt the conclusion of this session\, participants should be able to: \n\n\n\nExplain how EPSDT sets a standard for care for children and youth and its relationship to medical necessityCompare the relationship of Title V and Medicaid for supporting coverage and access to services in states.Define the first steps in the process of getting prior authorization for medically necessary services\n\n\n\n \n\n\n\n \n\n\n\nTarget Audience: \n\n\n\nHealthcare Providers\, Public Health Professionals\, Individuals/Families \n\n\n\n \n\n\n\n \n\n\n\nThe Catalyst Center (Grant U1TMC31757) is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $500\,000\, with no financing by nongovernmental sources. The contents are those of the author(s) and do not necessarily represent the official views of\, nor an endorsement\, by HRSA\, HHS or the U.S. Government. \n\n\n\nThe National Coordinating Center for the Regional Genetics Networks is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) under Cooperative Agreement #UH9MC30770 from 6/2020-5/2024 for $800\,000 per award year. This information or content and conclusions are those of the author and should not be construed as the official position or policy of\, nor should any endorsements be inferred by HRSA\, HHS or the U.S. Government.
URL:https://geneticspolicy.nccrcg.org/event/medical-necessity-webinar-series-part-2-medicaid-and-early-and-periodic-screening-diagnosis-and-treatment-epsdt-the-title-v-and-medicaid-relationship/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220518T130000
DTEND;TZID=America/New_York:20220518T130000
DTSTAMP:20260416T071122
CREATED:20220428T200045Z
LAST-MODIFIED:20220428T200117Z
UID:3209-1652878800-1652878800@geneticspolicy.nccrcg.org
SUMMARY:Time 4 Genetics Webinar - Genetic Testing: It’s Not Rocket Science
DESCRIPTION:May 18\, 2022(at 10am PT\, 11 am MT\, noon CT\, and 1pm ET)featuring Guest Presenters: \n\n\n\nGuest Presenters: \n\n\n\nDaryl A. Scott\, MD\, PhD \n\n\n\nAssociate professor at Baylor College of Medicine & Clinical Geneticist at Texas Children’s Hospital \n\n\n\nHaley Streff\, MS\, CGC \n\n\n\nClinical Instructor at Baylor College of Medicine & Certified Genetic Counselor at Texas Children’s Hospital \n\n\n\nFor a clickable and ready to share PDF version of the event flyer please download: here
URL:https://geneticspolicy.nccrcg.org/event/3209/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220429T120000
DTEND;TZID=America/New_York:20220429T130000
DTSTAMP:20260416T071122
CREATED:20220418T201909Z
LAST-MODIFIED:20220418T201911Z
UID:3206-1651233600-1651237200@geneticspolicy.nccrcg.org
SUMMARY:Shedding Light on the Use of Population Descriptors in Clinical Genetics
DESCRIPTION:Edit Event \n\n\n\n\n\n\n\n\n\n \n\n\n\nSESSION 1 – April 29: Shedding Light on the Use of Population Descriptors in Clinical Genetics \n\n\n\nQuestion: How is information about patient race\, ethnicity\, and ancestry on clinical laboratory requisition forms used in your work? In clinical genetics more broadly? \n\n\n\nGoal: Understand context for race\, ethnicity\, and ancestry on clinical lab requisition forms \n\n\n\nSpeakers: \n\n\n\nAlice Popejoy\, PhD: Video coming soonGillian Hooker\, PhD\, ScM\, CGC: The Challenges of Standardization in a System with Complex IncentivesHannah Wand\, MS\, CGC: Race\, Ethnicity\, and Ancestry (REA) in Clinical Genetics: Variability in Collection and UseModerator: Mildred Cho\, PhD \n\n\n\nPlease watch the videos before attending the discussion (click on each title next to speaker names above to access the video). The videos will not be shown during the discussion on April 29\, 2022. During the session\, the presenters will answer questions about their research and take part in an open discussion with all attendees. Please bring your questions\, join the discussion\, and expect to network with your colleagues. We hope you will make new connections and start new conversations on ELSI research. \n\n\n\nJoin us from 12:00-1:00 pm ET / 9:00-10:00 am PT on April 29\, 2022. \n\n\n\nPlease note: by registering for an ELSIhub event participants and attendees agree to abide by the ELSIhub Code of Conduct. \n\n\n\nEvent DetailsSpeaker Name(s)Mildred Cho\, PhDGillian Hooker\, PhD\, ScM\, CGCAlice Popejoy\, PhDHannah Wand\, MS\, CGC
URL:https://geneticspolicy.nccrcg.org/event/shedding-light-on-the-use-of-population-descriptors-in-clinical-genetics/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220425T130000
DTEND;TZID=America/New_York:20220425T140000
DTSTAMP:20260416T071122
CREATED:20220412T144900Z
LAST-MODIFIED:20220412T170315Z
UID:3161-1650891600-1650895200@geneticspolicy.nccrcg.org
SUMMARY:Medical Necessity Webinar Series Part 1 - Define and Discuss the Use of Evidence to Form Medical Necessity Criteria and Policy
DESCRIPTION:
URL:https://geneticspolicy.nccrcg.org/event/medical-necessity-webinar-series-part-1-define-and-discuss-the-use-of-evidence-to-form-medical-necessity-criteria-and-policy/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220414T130000
DTEND;TZID=America/New_York:20220414T140000
DTSTAMP:20260416T071122
CREATED:20220413T164146Z
LAST-MODIFIED:20220413T164528Z
UID:3194-1649941200-1649944800@geneticspolicy.nccrcg.org
SUMMARY:Lunch and Learn: “The Affordable Care Act at 12”
DESCRIPTION:Edit Event \n\n\n\n\n\n\n\n\n\nOn April 14\, Health Affairs will host a periodic check-in on the status and future of the Affordable Care Act (ACA). Contributing Editors Katie Keith and Tim Jost — Health Affairs’ dynamic duo on all things ACA — will be joined by analyst Rodney Whitlock of McDermott+ Consulting\, for a discussion of how we got to this point in health reform and where we might be going next. Health Affairs Forefront Editor Chris Fleming will host. 
URL:https://geneticspolicy.nccrcg.org/event/lunch-and-learn-the-affordable-care-act-at-12/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20220329T080000
DTEND;TZID=America/New_York:20220329T170000
DTSTAMP:20260416T071122
CREATED:20220404T142044Z
LAST-MODIFIED:20220412T173659Z
UID:3150-1648540800-1648573200@geneticspolicy.nccrcg.org
SUMMARY:ELSI Friday Forum | Balancing Data Privacy and Data Sharing: Normative and Technical Approaches
DESCRIPTION:
URL:https://geneticspolicy.nccrcg.org/event/elsi-friday-forum-balancing-data-privacy-and-data-sharing-normative-and-technical-approaches/
END:VEVENT
END:VCALENDAR